ALSWiki.org is a not-for-profit website dedicated to improving the lives of those living with ALS by providing practical information sourced from people living with the disease, their caregivers, and qualified physicians.
ALSWiki.org is not affiliated with any corporation or government institution. This allows ALSWiki.org to cover topics in a manner that is less generic, or restricted to a specific region. It also allows for a broader scope across subjects such as finance and occupational therapy, which would likely not be covered by a medical institution's publications.
ALSWiki.org is actively maintained; other publications can go months or years without being updated.
Social media sites and forums are subject to significant churn, which makes finding content difficult. ALS-specific content also lives among all other irrelevant content on the given platform. Content can be lost forever if the authors close their accounts or pass away. ALSWiki.org has a content corpus that is discoverable, easily navigable, and is preserved over the course of time.
ALSWiki.org is actively seeking medical professionals to review the content.
ALSWiki.org is financed entirely by donations.
ALSWiki.org is presently only available in English. Spanish translations will be available later in 2024.
Individuals looking to provide translations in other languages should contact ALSWiki.org.
The organization itself is based in Canada. The servers are located in the United States and other regions.
The concept was first documented in late 2023; active development began in March 2024.
Priority | Task |
---|---|
1 | Complete all English language articles |
2 | Add diagrams and images to articles |
3 | Translate all articles into Spanish |
Date | Event |
---|---|
Q4 2023 | ALSWiki.org concept created. |
March 21, 2024 | Domain name purchased, development started. |
May 23, 2024 | Site made publicly available, but not widely publicized. |
July 10, 2024 | Some initial publicity efforts. |