ALSWiki.org is a free online guide for living with ALS/MND. Its purpose is to provide patients and caregivers with accurate, detailed information about all aspects of living with ALS/MND.
The goal of ALSWiki.org is to help readers make informed decisions about care, purchases, and lifestyle choices. We believe that patients and caregivers have the right to understand how to adapt to current needs and prepare for what the future may hold.
Content on ALSWiki.org is written primarily by patients and caregivers, while also consulting with professionals and reliable online sources to ensure accuracy.
As an independent organization, ALSWiki.org operates free from any incentives to provide biased information or promote products and services that are not of interest to the community.
ALSWiki.org was created by Craig Reyenga, a man from Ottawa, Canada that was diagnosed with ALS in February 2023.
ALSWiki.org independent. It is not affiliated with any corporation or government institution. This allows ALSWiki.org to cover topics in a manner that is less generic, or restricted to a specific region. It also allows for a broader scope across subjects such as finance and unconventional adaptations, which would likely not be covered by a medical institution's publications.
ALSWiki.org is actively maintained. Other publications can go months or years without being updated.
It's easy to find content. Social media sites and forums are subject to significant churn, which makes finding content difficult. ALS-specific content also lives among all other irrelevant content on the given platform. Content can be lost forever if the authors close their accounts or pass away. ALSWiki.org has a content corpus that is discoverable, easily navigable, and is preserved over the course of time.
ALSWiki.org is actively seeking medical professionals to review the content.
Yes, ALSWiki.org does use AI tools, but not to generate large sections of content.
AI tools are used for the following:
AI tools are not used for the following:
ALSWiki.org does not use AI to generate content as a replacement for humans because it may be inaccurate or derived from incredible sources.
Any content that appears to be inaccurate for any reason should be reported.
According to the Google Analytics console for ALSWiki.org, ChatGPT has been using ALSWiki.org as a source of information.
ALSWiki.org is financed by donations and the very small profits earned from selling products.
ALSWiki.org is presently only available in English.
Individuals looking to provide translations in other languages should contact ALSWiki.org.
ALSWiki.org is a federally incorporated nonprofit organization in Canada.
ALSWiki.org is not a registered charity and does not operate as one. Operating as a registered charity brings with it increased costs, which cannot be justified at this time.
ALSWiki.org is a member of the International Alliance of ALS/MND Associations.
| 2023 | |
|---|---|
| Q4 2023 | ALSWiki.org concept created. |
| 2024 | |
| March 21, 2024 | Domain name purchased, development started. |
| May 23, 2024 | Site made publicly available, but not widely publicized. |
| July 10, 2024 | Some initial publicity efforts. |
| November 1, 2024 | ALSWiki.org is incorporated as a Canadian federal nonprofit. |
| 2025 | |
| June 1, 2025 | ALSWiki.org becomes an affiliate member of the International Alliance of ALS/MND Associations. |
| August 4, 2025 | ALSWiki.org launches ALSFRS-R.net. |