The Living With ALS section of ALSWiki.org covers topics related to managing symptoms, care, and other tasks.
This section has not been completed.
This section has not been completed.
The neck contains several muscles which are involved in supporting the head, along with speaking and swallowing needs. Some neck muscles are innervated by cranial nerves, while others are innervated by spinal nerves.
Neck muscles involved in supporting the head will weaken in the same manner as any other muscle affected by ALS. Bracing of the head to provide support becomes necessary when the neck muscles are no longer able to perform their duties.
The pattern of neck weakness progression as it pertains to supporting the head varies from individual to individual, however, “drop head”, where the head tends to drop forward is the most common early sign.
See: Occupational Therapy: Head and Neck Support
Daily tasks, such as dressing, preparing food, using the bathroom, and so forth are difficult or impossible for an individual with ALS, depending on their level of disease progression.
See: § Occupational Therapy for information about daily tasks.
Perineal care (or “peri care”) refers to maintaining health and cleanliness of the perineal region, the part of the body with the genitalia and anus.
Physiotherapy, also known as physical therapy, is a healthcare profession focused on optimizing movement and function. It involves assessing, diagnosing, and treating conditions that affect physical abilities and mobility, often through targeted exercises, manual therapy, education, and advice. Physiotherapists work with patients of all ages to promote recovery from injury, manage chronic conditions, prevent future injury, and enhance overall well-being.